Thursday, March 4: On our own at home

Dan is getting into the routine of medications, taking blood pressure and temperature readings, and not doing any lifting. So far, so good. He goes into the clinic for labs tomorrow morning for the first time. He’ll give blood, then he’ll need to wait around for about 2 hours while they get the results and determine whether his medication dosage needs to be changed. I’ll take him to these labs three times a week for two weeks, then two times a week, then once a week, and then every other week — depending on his lab results, of course, but that’s the plan. At three months, the transplant center will consider him “graduated”, take his success photo, and then they won’t need to see him again but maybe once or twice a year.

Dan accompanied me on a little trip around Gresham to run some errands during my lunch break. He wore his surgical mask in Walgreens, where a medical supply salesman stopped us and sold us a box of those masks out of his van. It sounds so odd, like: “Hey lady! You wanna buy a watch?” I’m still trying to decide whether or not to actually use them. I mean, who was this guy? He has a medical supply store in Oregon City, and I’m sure he’s legit, but there’s some skeptical part of me that’s not entirely convinced.

This evening was the big Book Fair-Poetry Reading-Sock Hop at Charlie’s school. Yeah, I know. I was wondering too, how they were going to do all of those things at once. It was utter chaos, but the kids sure had a lot of fun. Dan didn’t get to attend, but I took some video that I will try posting here soon. Charlie’s been waiting for Poetry Night since last year’s event. He was only in Pre-Kindergarten and he got up in front of a room of almost total strangers (he was new to his school at the time), and read a poem with a buddy. Such professional microphone skills! So tonight he picked out two poems by Shel Silverstein and waited an excruciatingly long time while the other kids read (with music/dance breaks after every three or four readings). Finally, it was his turn. He walked up on stage, sat down on the stool, and whispered to the teacher in charge that he wanted to read two poems and was it alright? He took the microphone and introduced himself, and then started reading the first poem. He only got to the second or third verse before he cracked up laughing, which was totally cute. He kept trying until his mommy, in somewhat of a panic because the camcorder was running out of film, suggested that he try the other, less funny poem. He read it, and then came back to the funny one. And finally made it through. What a trooper. I’m so glad his school puts on an event like this, because it showcases how important reading is, and makes it fun for kids to get up on stage and have some fun with their favorite poems. Oh, and dance in the disco-ball-lit darkness. While the parents tried to navigate the tables of books for sale at the book fair. Did I mention the squealing and conga lines? It sure was fun. We missed you Dan, but it’ll all be there on film.

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